The national Information, Advice and Support Services network.
Council For Disabled Children
The Information, Advice and Support Services Network
Advice, information and support for parents of disabled children, whatever their health condition. They also bring families together so they can support each other.
Guide Dogs provide services for children, young people and families. Find support:
You can visit their website or call them on 0800 781 1444 or email on firstname.lastname@example.org
Supports families with children affected by a neurological condition aged under 17 years. For example: neuro-genetic conditions, Cerebral Palsy, Epilepsy, Developmental Delay, Autism, ADHD, Learning Difficulties.
Provides advice to service and MOD families about the education of service children, including issues relating to SEND.
Supports children, young people and adults with sensory impairment, and their families. The people we support are deafblind, or sometimes have single sensory impairment with additional needs and/or multi sensory impairment.
The only charity dedicated to the bowel and bladder health of all children and teenagers in the UK. They provide expert support, information and understanding to children, teenagers, parents, carers and professionals.
The IPSEA helpline operates as a call back service, offering 30 minute telephone advice sessions.
Offers a phone service called Navigate that provides support at the start of your journey as a parent of a disabled child. It's a 6 week programme that aims to put you in touch with a personal advisor, helping you to talk about your feelings and concerns.
Phone them on 0808 801 0510. They're open:
Scope’s Disability Energy Support service provides free energy advice to any household where a disabled person lives across England and Wales.
Information about benefits and financial help for disabled people with disabilities.
A group of 60 disability and children’s organisations campaigning for improved health and social care.
AccessAble publish accessibility information for places of interest in the UK and the Republic of Ireland. They have accessibility information about venues in Bristol.
Advice on daily living equipment, such as using baths and moving disabled children in and out of them.
Provides support and services for autistic people (including those with Asperger's syndrome), their parents and carers, and professionals.
A national support service for deaf and hard of hearing children.
Provides emotional and practical support to families who have a child with life-threatening or terminal illness. They support seriously ill children, up to the age of 18 with a life threatening or terminal condition, and their families in the family home and local community.
Referrals can come from any source. They enable families to manage everyday life whilst caring for a sick child and to make the most of time together.
Call 01249 705881 to find out about the services in the South West.
A leading support and research charity for people with Tourette Syndrome and their families.
Provides support to people who grow up with, or have grown up with, a disabled brother or sister.
Offers a childhood stroke support service, providing information, advice and networking events to families affected by stroke in childhood. Contact them online or call 0303 3033 100.
provides a number of free to download resources, which contain practical information and advice for parents and carers who have a child with nystagmus.
The Listening Ear is from the charity Contact (for families with disabled children). They offer one to one telephone appointments with a family support adviser for parent carers looking for a listening ear, reassurance and practical and emotional support.