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Holy Cross

Catholic Primary School

If you are able to contribute to the ‘Go fund me page set up to support the Creary family at this very difficult time please follow this link - https://gofund.me/ff175b85
CEOP
Latest News
Message from Mrs Kingston We have noticed increasing levels of playground chat about the game Fortnite— Battle Royale which is a PEGI 12+ gun battle game which requires players to work as a team. The main risks to children are interacting with strangers and also making costly in-app purchases. If your child is talking about Fortnite, please follow this link to find out more about it. https:// www.internetmatters.org/hub/guidance/ fortnite-battle-royal-parents-guide-keepkids-safe-gaming/

National Support for Families with Children with SEND

 

The national Information, Advice and Support Services network.

Council For Disabled Children

The Information, Advice and Support Services Network

https://councilfordisabledchildren.org.uk/about-us-0/networks/information-advice-and-support-services-network

 

Contact

Advice, information and support for parents of disabled children, whatever their health condition. They also bring families together so they can support each other.

 

Guide Dogs

Guide Dogs provide services for children, young people and families. Find support:

  • for your family
  • to guide your child through school
  • with assistive technology and sensory toys
  • to help your child read 
  • for help with early diagnosis 
  • to develop life skills
  • to get out and about safely

You can visit their website or call them on 0800 781 1444 or email on children@guidedogs.org.uk

 

Cerebra

Supports families with children affected by a neurological condition aged under 17 years. For example: neuro-genetic conditions, Cerebral Palsy, Epilepsy, Developmental Delay, Autism, ADHD, Learning Difficulties.

 

Children's Education Advisory Service (CEAS)

Provides advice to service and MOD families about the education of service children, including issues relating to SEND. 

 

Sense

Supports children, young people and adults with sensory impairment, and their families. The people we support are deafblind, or sometimes have single sensory impairment with additional needs and/or multi sensory impairment.

 

ERIC

The only charity dedicated to the bowel and bladder health of all children and teenagers in the UK. They provide expert support, information and understanding to children, teenagers, parents, carers and professionals.

 

Independent Parental Special Educational Advice

The IPSEA helpline operates as a call back service, offering 30 minute telephone advice sessions.

 

Scope

Scope Navigate

Offers a phone service called Navigate that provides support at the start of your journey as a parent of a disabled child. It's a 6 week programme that aims to put you in touch with a personal advisor, helping you to talk about your feelings and concerns.

Phone them on 0808 801 0510. They're open:

  • Monday to Friday, 9am to 8pm
  • Saturday, 9am to 12pm

Scope Disability Energy Support

Scope’s Disability Energy Support service provides free energy advice to any household where a disabled person lives across England and Wales.

Book an appointment at Scope Disability Energy Support.
Freephone: 0808 801 0828, Monday to Friday 11am to 4pm, excluding bank holidays.
Email: disability.energysupport@scope.org.uk.

 

GOV.UK 

Information about benefits and financial help for disabled people with disabilities.

 

Disabled Children’s Partnership

A group of 60 disability and children’s organisations campaigning for improved health and social care.

 

AccessAble

AccessAble publish accessibility information for places of interest in the UK and the Republic of Ireland. They have accessibility information about venues in Bristol.

 

AskSARA 

Advice on daily living equipment, such as using baths and moving disabled children in and out of them.

 

National Autistic Society

Provides support and services for autistic people (including those with Asperger's syndrome), their parents and carers, and professionals.

 

National Deaf Children's Society

A national support service for deaf and hard of hearing children.

 

Rainbow Trust Children's Charity

Provides emotional and practical support to families who have a child with life-threatening or terminal illness. They support seriously ill children, up to the age of 18 with a life threatening or terminal condition, and their families in the family home and local community.

Referrals can come from any source. They enable families to manage everyday life whilst caring for a sick child and to make the most of time together.

Call 01249 705881 to find out about the services in the South West.

 

Tourettes Action

A leading support and research charity for people with Tourette Syndrome and their families.

If you know of any organisations that should be on this list please let us know by emailing us at bristollocaloffer@bristol.gov.uk or using our feedback form.

 

Sibs

Provides support to people who grow up with, or have grown up with, a disabled brother or sister.

 

The Stroke Association

Offers a childhood stroke support service, providing information, advice and networking events to families affected by stroke in childhood. Contact them online or call 0303 3033 100.

 

The Nystagmus Network

provides a number of free to download resources, which contain practical information and advice for parents and carers who have a child with nystagmus.

 

The Listening Ear

The Listening Ear is from the charity Contact (for families with disabled children). They offer one to one telephone appointments with a family support adviser for parent carers looking for a listening ear, reassurance and practical and emotional support.

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